Liver Diseases

Alpha-1-antitrypsin deficiency (Alpha-1) is a relatively common genetic disorder which is characterized by low levels of alpha 1-antitrypsin (Alpha-1), a protein found in the blood. This deficiency can cause lung disease, and less commonly, liver disease. It occurs in approximately 1 in 3,000 people.

Alpha-1 New Zealand
"ALPHA-1 aims to educate individuals and families affected by alpha-1 antitrypsin deficiency, raise the level of public and professional understanding of the deficiency, represent the needs of members to the wider community, and support research dedicated to the control and cure of the condition and its associated lung, liver and other disorders." (From their home page)

Alpha 1 Association
This United States site includes a contact support name for people with the liver form of Alpha 1.

Alpha 1 Foundation
This is a United States "not for profit" organization established in 1995 with the aim of providing leadership and resources "that will result in increased research, improved health, worldwide detection and a cure for Alpha₁-Antitrypsin Deficiency (Alpha-1)." (From their Mission Statement).

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Haemochromatosis is caused by an overload of iron in the body. It is primarily a hereditary condition, although it has also been known to develop " as a result of dietary iron intake in sufficient quantity ". Although it is a common genetic disorder, it is not well known.

The Canadian Hemochromatosis Society
The Canadian Hemochromatosis Society is an unfunded registered non profit society founded in 1980. They have an Awareness Week from May 25-31 each year in Canada.

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The Hepatitis Foundation
This New Zealand site covers Hepatitis B and Hepatitis C.

HepNet: The Hepatitis Information Network (Canada)
This site covers Hepatitis A, B, C, D and G. There is a very informative Liver in Disease section that covers more than Hepatitis.

Hepatitis C

Hepatitis C Support Group (NZ)
This new website has useful information, contact names, a newsletter and more.

Hepatitis C
This U.S. site provides current information on Hepatitis C including information on support groups and medical articles.

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British Liver Trust Information Service - Cancer
Full information about Primary and Secondary Liver Cancer, tests,treatments and future developments.

Cancer Society of New Zealand
This New Zealand organisation can offer support to those with liver cancer.

CancerAnswers.com
Information about Liver Cancer.

CancerLinks - Liver
This is a comprehensive list of international websites on this topic.

CancerNet - Liver
The National Cancer Institute (U.S.) provides helpful information on this site.

InteliHealth - Liver Cancer
Outlines risk factors, prevention, signs and symptoms, diagnosis and treatment.

The Liver Cancer Network
This website is the work of the Allegheny General Hospital (U.S.) and contains information about various treatments.

Primary Liver Cancer
Contains useful information, including on treatments and lifestyle changes.

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Wilson's Disease
This is the U.K. support group's site and includes an online newsletter.

Wilson's Disease Association International
This is a volunteer association promoting Wilson's Disease patients and families health and well-being. There is a newsletter, The Copper Connection, available online as well as information about Wilson's Disease, a genetic disorder to do with the inability to metabolise copper.

The June 2007 issue of "The Copper Connection" (1.81 MB, PDF format) is available here.

The American Association for the Study of Liver Diseases have published "A Practice Guideline on Wilson's Disease" on their website. This has been written by Dr. Michael Schilsky (Mount Sinai Medical Centre, New York, United States) and Dr. Eve Roberts (Hospital for Sick Children, Toronto, Canada). It is available as an 18 page .PDF document, and is targetted to physicians to be used in the diagnosis and treatment of Wilson's Disease.

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